I could not imagine any child having to fight this cancer without all of the resources that Mark had. “Yet at UNC, he had the best care: a private hospital room, attentive nurses, anti-nausea medicine, antibiotics, nutritional support, specialists, and transportation to an emergency room when he was critically ill. He got down to only 108 pounds and had many side effects,” said Nancy Robinson, Porter and Mark’s mother. Together, they established the Robinson Malawi Fund so families “won’t needlessly lose loved ones.”“While Mark was undergoing treatment, it was hard to watch him suffer. Westmoreland about her work to treat Burkitt lymphoma in Malawi, where prevalence of the cancer is much higher and the survival rate can be as low as 29 percent. Porter describes Mark’s battle with Burkitt lymphoma as “utterly devastating and one of the most difficult things I’ve ever been through and surely a million times worse for Mark.” Through their family’s collective desire to help others avoid the same suffering, the Robinson’s approached Dr. Porter Robinson at his brother Mark’s side at UNC Hospitals. This is not the case for children living in the developing world, where the cancer can be a death sentence. Through intensive treatment with chemotherapy, this cancer has as five-year survival rate of 90 percent in the United States. Mark’s recovery is typical for Americans diagnosed with Burkitt lymphoma. John Hipps treated Mark, and he began his road to recovery. It was hard to escape how blessed we were to have Mark receiving the best possible care.” She told us about UNC Project-Malawi and about the country’s lower survival rates. As we inquired about her life, she revealed her passion for caring for the children in Malawi who suffer from the exact same cancer that Mark had. “We spent long hours in the UNC hospital room with Mark and while we did, we got to know Dr. “Mark’s chemotherapy treatment at UNC was intensive and sometimes lasted for five straight days,” said Nick Robinson, Porter and Mark’s father.
The cause of the mass was a rare and aggressive form of cancer called Burkitt lymphoma.
Mark was in the hospital with an abdominal mass that was doubling in size every 24 hours. Porter was touring in Philadelphia when he received a call that would change his life forever. Three years later, they have raised more than $154,700 to support the treatment of pediatric cancer in Malawi. Kate Westmoreland in November 2016, when Porter’s younger brother Mark came into Dr. Grammy-nominated musician, record producer, and Chapel Hill native Porter Robinson first met pediatric oncologist Dr. Mark Robinson visits with a therapy dog at UNC Hospitals.
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